The care economy
Who actually pays for care, who provides it, and why does our system leave so much of the hardest work to families, for free?
As a physician I knew the system from the provider and payer side. As a parent of a child with a rare disease, I learned it from the family side, where caregiving is a full-time job that nobody budgets for.
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Developing
Caregiving is invisible infrastructure
Unpaid family caregivers hold up the health system the way roads hold up commerce. We should count and fund them that way.
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Developing
The paperwork tax
Families who rely on social services pay a hidden cost in forms, phone calls, and waiting. That time is a tax, and it falls hardest on people with the least of it.
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Seed
Designing benefits from the family's side
What would social services look like if they were designed by the people who use them?